European Parliament 15 October 2012, Written question E-009253/12 Georgios Papanikolaou (PPE) to the Commission. Support for patients suffering from very rare diseases

Question for written answer E-009253/12 to the Commission Georgios Papanikolaou (PPE) (15 October 2012) Subject: Support for patients suffering from very rare diseases In Europe today there are thousands of patients suffering from very rare diseases, many of which are not registered (precisely because they are so rare) in Member States' national health systems; this means that patients do not